This year, ALS advocate and researcher Cai Lei has faced a personal hurdle: the new drug Rag-17 won’t help him because he doesn’t carry the needed genetic mutation. But instead of stepping back, Cai is stepping up. 💪
Since his diagnosis, Cai leads his research team from behind an eye-tracking device that lets him communicate with a blink or a gaze. It’s like having a superpower—👁️ that keeps him connected to his colleagues and the global ALS community.
Although Rag-17 targets a specific genetic profile, Cai’s vision is broader. He’s funding multiple studies, from gene therapies to neuroprotective treatments, making sure research doesn’t stall even if one path hits a dead end. 🧪
Beyond the lab, Cai organizes online care training sessions for families of people with ALS. From nutrition tips to mobility tools, these virtual workshops empower caregivers across continents. 🌍
Cai’s journey shows that resilience isn’t just about fighting a disease—it’s about lifting others as you rise. His story inspires young researchers, patients, and families to stay curious, stay connected, and never give up. ✨
With eyes set on the future, Cai Lei continues to champion ALS research and community support, reminding us all that real change starts when we refuse to quit. Are you ready to join the mission? 🚀
Reference(s):
Despite drug mismatch, Cai Lei continues to support ALS research
cgtn.com
